Neuroendocrine Cancer UK - Not Just NE Cancer Podcast
Real life experiences, practical advice and everything in between. Whether you are diagnosed with Neuroendocrine Cancer or another rare or less common cancer, our podcast series cover topics from initial diagnosis, treatments and follow up, looking after your mental health and the professional perspectives from those involved in your care. Hosted by Catherine Bouvier and produced by Neuroendocrine Cancer UK. We hope this series answers some of your questions or provides a source of support - or both, after all, this is not just NE cancer.
Episodes
41 episodes
INCA President, Stephanie Alband | World Neuroendocrine Cancer Day 2024
In this episode of the Not Just NE Cancer podcast, Cathy chats with International Cancer Alliance (INCA) President, Stephanie Alband about the upcoming World Neuroendocrine Cancer Day 2024, the member organisations that make up INCA and the neu...
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Season 3
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Episode 11
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27:20
Mind Matters: Exploring Mental Health and Coping Strategies in Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, Cathy chats with patients and ambassadors, Chrissie and Caroline about their coping strategies for living with neuroendocrine cancer. This is a open conversation where Caroline and Chrissie are...
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Season 3
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Episode 9
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50:47
The Realities of Living with Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, we discuss the realities of self-advocacy while living with neuroendocrine cancer. Join us as we explore the challenges and triumphs of advocating for oneself in the healthcare system.
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Season 3
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Episode 8
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52:10
Neuroendocrine Cancer Treatments: Insights from Jane and Carolyn
In this episode of the Not Just NE Cancer podcast, Cathy speaks with Jane and Carolyn about their experiences with neuroendocrine cancer treatment. Jane discusses her journey with CAPTEM, PRRT and now four-weekly Lanreotide, while ...
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Season 3
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Episode 7
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45:14
Nutritional Issues Associated with a Neuroendocrine Cancer Diagnosis and Treatments
In this episode, Neuroendocrine Cancer UK's CEO, Catherine Bouvier, talks with Clinical Lead Dietitian, Yasmin Chotai de Lima, about crucial topics related to nutrition and neuroendocrine cancer. They provide advice on coping with the PERT shor...
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Season 3
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Episode 7
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58:49
Neuroendocrine Cancer: Progress, AI, and How it all Began with Professor Martyn Caplin
In this episode of the "Not Just NE Cancer" podcast, host Cathy sits down with Porfessor Martyn Caplin, Gastroenterologist, Neuroendocrinologist and Neuroendocrine Cancer UK Patron, for an insightful conversation about the development of unders...
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Season 3
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Episode 6
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1:05:45
Rare Diseases and Clinical Trials
Delve into the complexities of clinical trials within the rare disease landscape in this podcast episode. Explore firsthand the journey of a patient participating in a pharmaceutical trial and gain valuable insights into initiating conversation...
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Season 3
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Episode 5
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53:37
Life After Diagnosis: Navigating Work, Pregnancy, and Motherhood with Neuroendocrine Cancer
In this insightful podcast episode, Catherine Bouvier, CEO of Neuroendocrine Cancer UK, engages in a heartwarming conversation with Rachael, a resilient mother who navigated the challenges of work, pregnancy, and motherhood following a diagnosi...
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Season 3
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Episode 4
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23:22
Sex Education and Cancer
Join Nikie from Neuroendocrine Cancer UK as she sits down with Sarah Peart, a Sexuality Educator currently pursuing a master's degree in Clinical Psychosexology. Sarah's empirical dissertation delves into the often-overlooked realm of how cance...
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Season 3
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Episode 3
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32:21
Neuroendocrine Cancer UK - Reflecting on the Last 21 Years
This marks the first episode of the 2024 'Not Just NE Cancer' podcast series. Host Catherine Bouvier and guest Peter Gwilliam reflect on the last 21 years of Neuroendocrine Cancer UK. Peter, the Chair Trustee of Neuroendocrine Cancer UK and co-...
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Season 3
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Episode 2
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32:27
Cancer Genomics: A Conversation with Professor Thirlwell
In this week's podcast, we delve into genomics research with Professor Chrissie Thirlwell, a cancer genomics and Head of the Medical School at the University of Bristol. She is also a Consultant Medical Oncologist, Secretary of UKINETs, and Co-...
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Season 2
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Episode 10
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34:40
In Loving Memory of Andrew: A Story of Resilience and Love
In this special one-off podcast, join us for a heartfelt narrative, narrated by Neuroendocrine Cancer UK's, Specialist Nurse, Nikie, as we remember and celebrate the life of Andrew Cheetham. This poignant story, written by his wife, Faye, refle...
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Season 3
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Episode 1
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17:25
Surgical Research and Neuroendocrine Cancer
In this episode of our 'Not Just NE Cancer Takeover Series,' we are honoured to welcome Mr Samuel Ford, a consultant surgeon specialising in NET surgery, general and upper gastrointestinal surgery, and sarcoma surgery. Additionally, he serves a...
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Season 2
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Episode 9
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27:14
Decoding Neuroendocrine Cancer: What is Epidemiology?
In this episode of the 'Not Just One Cancer Takeover Series,' we had the privilege of speaking with Dr. Ben White, a specialist registrar in Gastroenterology and Hepatology. Dr. White's expertise centers on neuroendocrine cancer epidemiology. E...
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Season 2
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Episode 8
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33:14
Julie's Story: Navigating High-Grade Neuroendocrine Cancer
In this episode of Neuroendocrine Cancer UK's 'Not Just NE Cancer' series, hosted by Catherine Bouvier, Julie courageously shares her journey through high-grade neuroendocrine cancer. She discusses her challenges with treatment and progression,...
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Season 1
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Episode 20
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43:01
Exploring Neuroendocrine Cancer Epidemiology with Prof. John Ramage
In this episode, we have a fascinating conversation with Professor John Ramage, consultant physician in gastroenterology and hepatology at Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Partners NET Centre. Prof Ramage...
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Season 2
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Episode 7
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16:27
Advancing Oncology: Neuroendocrine Cancer Research with Dr. Rohini Sharma
In this episode, we delve into the world of oncology research with Dr. Rohini Sharma, a consultant medical oncologist and the oncology lead for Neuroendocrine Cancer and liver cancer at Imperial College London. Join us as we e...
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Season 2
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Episode 6
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11:41
Neuroendocrine Cancer and Quality of Life Research: Conversations with Prof. John Ramage
In this episode, we talk to Professor John Ramage about quality-of-life research. Prof Ramage is a consultant physician in gastroenterology and hepatology at the Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Par...
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Season 2
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Episode 5
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22:40
Beyond the Lab: Unravelling Rare Cancer with Andy Hall
In this episode, Neuroendocrine Cancer UK's Campaign Lead, Lisa interviews Andy Hall, Chief Scientific Officer at RareCan—an organisation dedicated to improving outcomes for individuals with rare forms of cancer. Join them in a t...
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Season 2
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Episode 4
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26:27
Neuroendocrine Cancer Research: Humanising Clinical Trials with Ancora.ai
In this week's podcast episode, we feature Ancora.ai, a company connecting cancer patients with clinical trials and empowering them to understand ongoing trial options. Ancora.ai maintains a research database of all ongoing cancer tria...
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Season 2
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Episode 3
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30:21
Neuroendocrine Cancer UK Explores RareCan's Innovative Research Platform
Welcome to the latest episode of the "Not Just NE Cancer Takeover Series." Following our successful launch last week, this series continues to delve into the world of neuroendocrine cancer research, with a specific focus on our newly introduced...
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Season 2
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Episode 1
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16:43
Neuroendocrine Cancer - Advancing Research
NOT JUST NE CANCER TAKEOVER SERIES!Join Neuroendocrine Cancer UK CEO, Catherine, and Campaigns Lead, Lisa, in this informative and inspiring podcast episode. Neuroendocrine Cancer UK is proud to announce the launch of their Advan...
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Season 2
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Episode 1
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13:56
Liver Transplants for Neuroendocrine Cancer patients
In this episode, Neuroendocrine Cancer UK's CEO, Catherine Bouvier, talks to Dr Tahir Shah about his work in developing a new service for Neuroendocrine Cancer patients to improve outcomes and their quality of life through using surgery and liv...
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Season 1
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Episode 19
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34:39
Mindfulness and Cancer
In this episode Neuroendocrine Cancer UK CEO, Catherine talks with Rareminds Mindfulness Programmes Lead, Steve about mindfulness and how it can help those with cancer to help manage pain and daily life. Steve is a core teach...
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Season 1
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Episode 18
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34:50
Neuroendocrine Cancer - When The Nurse Becomes The Patient
In this episode, Catherine talks to Neuroendocrine Cancer Clinical Nurse Specialist, Debbie. In December 2021, Debbie's life took an unexpected turn when she was diagnosed with breast cancer. Debbie shares her experience of a cance...
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Season 1
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Episode 17
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52:14