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The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer
The Invisible Cancer Podcast raises awareness of neuroendocrine cancer, a cancer most people have never heard of, and this lack of awareness can affect diagnosis, treatment, and care. Through real-life stories, expert insights, and practical advice, we explore the challenges patients face, from initial diagnosis to management, including the impact on mental health and ongoing follow-up.
Hosted by Lisa Walker and produced by Neuroendocrine Cancer UK, this podcast shines a light on neuroendocrine and other often-overlooked cancers, offering information, support, and connection to anyone affected.
Episodes
48 episodes
The Voices behind The Neuroendocrine Cancer 'Invisible Cancer' report
In the first episode of The Invisible Cancer podcast, we hear from the voices behind the Invisible Cancer Report, exploring why greater awareness and earlier diagnosis of neuroendocrine cancer are so important.Through h...
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Dipping for Dave: Raising Awareness of Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, Cathy speaks to Ruth, the incredible fundraiser and founder behind 'Daily Dip 4 Dave'.Since October 2023, Ruth has taken a cold-water dip every single day, inspired by her husband, Dave,...
Neuroendocrine Cancer - Seeing it from Both Sides - A Conversation with Kate & Craig
In this heartfelt and deeply personal episode, Neuroendocrine Cancer UK’s CEO, Cathy, interviews Kate Quirk and Craig Speirs. Both are not only professionals working for Neuroendocrine Cancer UK but are also living with neuroendocrine cancer th...
Bridging Pharma and Patients in Neuroendocrine Cancer Care
🎙️ In this episode of the Not Just NE Cancer podcast, Neuroendocrine Cancer UK CEO and Co-Founder, Cathy Bouvier Ellis sits down with Tanya Hills, Global Patient Engagement Lead at Boehringer Ingelheim.Toget...
What is Neuroendocrine Cancer? Back to Basics with Terminology & Classification
In this episode of the Not Just NE Cancer podcast, the first of 2025, Nikie Jervis, Neuroendocrine Cancer UK's Director of Support Services and NMC registered nurse goes back to basics to explain 'What Neuroendocrine Cancer' is. In conversation...
Fairylights & Flat Batteries - Kym Winter, CEO at Rareminds
In the final episode of the Not Just NE Cancer podcast of 2024, our host, Cathy, chats with Kym Winter, CEO, Founder and Director of Rareminds who some of our community may already know. In anticipation of the festive period, the ...
INCA President, Stephanie Alband | World Neuroendocrine Cancer Day 2024
In this episode of the Not Just NE Cancer podcast, Cathy chats with International Cancer Alliance (INCA) President, Stephanie Alband about the upcoming World Neuroendocrine Cancer Day 2024, the member organisations that make up INCA and the neu...
Navigating Grief: A Wife's Journey After Losing Her Husband to Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, our host, Cathy has a candid and heartfelt conversation with Sue about navigating grief after her husband, Ian passed away from neuroendocrine cancer.This episode may be upsetting for s...
Mind Matters: Exploring Mental Health and Coping Strategies in Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, Cathy chats with patients and ambassadors, Chrissie and Caroline about their coping strategies for living with neuroendocrine cancer. This is a open conversation where Caroline and Chrissie are...
The Importance of Self-Advocacy while Living with Neuroendocrine Cancer
In this episode of the Not Just NE Cancer podcast, we discuss the importance and realities of self-advocacy while living with neuroendocrine cancer. Join us as we explore the challenges and triumphs of advocating for oneself in the healthcare s...
Neuroendocrine Cancer Treatments: Insights from Jane and Carolyn
In this episode of the Not Just NE Cancer podcast, Cathy speaks with Jane and Carolyn about their experiences with neuroendocrine cancer treatment. Jane discusses her journey with CAPTEM, PRRT and now four-weekly Lanreotide, while ...
Nutritional Issues Associated with a Neuroendocrine Cancer Diagnosis and Treatments
In this episode, Neuroendocrine Cancer UK's CEO, Catherine Bouvier, talks with Clinical Lead Dietitian, Yasmin Chotai de Lima, about crucial topics related to nutrition and neuroendocrine cancer. They provide advice on coping with the PERT shor...
Neuroendocrine Cancer: Progress, AI, and How it all Began with Professor Martyn Caplin
In this episode of the "Not Just NE Cancer" podcast, host Cathy sits down with Porfessor Martyn Caplin, Gastroenterologist, Neuroendocrinologist and Neuroendocrine Cancer UK Patron, for an insightful conversation about the development of unders...
Rare Diseases and Clinical Trials
Delve into the complexities of clinical trials within the rare disease landscape in this podcast episode. Explore firsthand the journey of a patient participating in a pharmaceutical trial and gain valuable insights into initiating conversation...
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Life After Diagnosis: Navigating Work, Pregnancy, and Motherhood with Neuroendocrine Cancer
In this insightful podcast episode, Catherine Bouvier, CEO of Neuroendocrine Cancer UK, engages in a heartwarming conversation with Rachael, a resilient mother who navigated the challenges of work, pregnancy, and motherhood following a diagnosi...
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Sex Education and Cancer
Join Nikie from Neuroendocrine Cancer UK as she sits down with Sarah Peart, a Sexuality Educator currently pursuing a master's degree in Clinical Psychosexology. Sarah's empirical dissertation delves into the often-overlooked realm of how cance...
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Neuroendocrine Cancer UK - Reflecting on the Last 21 Years
This marks the first episode of the 2024 'Not Just NE Cancer' podcast series. Host Catherine Bouvier and guest Peter Gwilliam reflect on the last 21 years of Neuroendocrine Cancer UK. Peter, the Chair Trustee of Neuroendocrine Cancer UK and co-...
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Cancer Genomics: A Conversation with Professor Thirlwell
In this week's podcast, we delve into genomics research with Professor Chrissie Thirlwell, a cancer genomics and Head of the Medical School at the University of Bristol. She is also a Consultant Medical Oncologist, Secretary of UKINETs, and Co-...
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In Loving Memory of Andrew: A Story of Resilience and Love
In this special one-off podcast, join us for a heartfelt narrative, narrated by Neuroendocrine Cancer UK's, Specialist Nurse, Nikie, as we remember and celebrate the life of Andrew Cheetham. This poignant story, written by his wife, Faye, refle...
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Surgical Research and Neuroendocrine Cancer
In this episode of our 'Not Just NE Cancer Takeover Series,' we are honoured to welcome Mr Samuel Ford, a consultant surgeon specialising in NET surgery, general and upper gastrointestinal surgery, and sarcoma surgery. Additionally, he serves a...
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Decoding Neuroendocrine Cancer: What is Epidemiology?
In this episode of the 'Not Just One Cancer Takeover Series,' we had the privilege of speaking with Dr. Ben White, a specialist registrar in Gastroenterology and Hepatology. Dr. White's expertise centers on neuroendocrine cancer epidemiology. E...
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Julie's Story: Navigating High-Grade Neuroendocrine Cancer
In this episode of Neuroendocrine Cancer UK's 'Not Just NE Cancer' series, hosted by Catherine Bouvier, Julie courageously shares her journey through high-grade neuroendocrine cancer. She discusses her challenges with treatment and progression,...
Exploring Neuroendocrine Cancer Epidemiology with Prof. John Ramage
In this episode, we have a fascinating conversation with Professor John Ramage, consultant physician in gastroenterology and hepatology at Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Partners NET Centre. Prof Ramage...
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Advancing Oncology: Neuroendocrine Cancer Research with Dr. Rohini Sharma
In this episode, we delve into the world of oncology research with Dr. Rohini Sharma, a consultant medical oncologist and the oncology lead for Neuroendocrine Cancer and liver cancer at Imperial College London. Join us as we e...
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Neuroendocrine Cancer and Quality of Life Research: Conversations with Prof. John Ramage
In this episode, we talk to Professor John Ramage about quality-of-life research. Prof Ramage is a consultant physician in gastroenterology and hepatology at the Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Par...
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